Healthcare Transitions – Toolkit

Welcome to the Family SHADE Healthcare Transitions Symposium Toolkit

Transitions in healthcare, whether it’s moving from pediatric to adult services, planning for emergencies, or understanding legal decision-making, can feel overwhelming. That’s why we created this toolkit: to help families, caregivers, and young people navigate these changes with confidence, clarity, and support.

Inside, you’ll find:

• Practical planning tools (crisis care plans, healthcare plans, advance directives)

• Information about your legal rights and choices (guardianship, supported decision-making, durable power of attorney)

• Flyers and guidance to help you access services in Delaware

• Decision trees and step-by-step checklists to simplify complex processes

We hope this toolkit empowers you:

• To ask questions with confidence

• To make informed decisions about care and supports

• To create a transition plan that reflects your values and goals

You are not alone. The Parent Information Center of Delaware, along with our partners, are here to help you every step of the way.

Thank you for letting us be a part of your journey.

My Crisis Care Plan

My Healthcare Plan

My Emergency Care Plan

Individualized Health Plan

Disability Rights Flyer

Delaware Healthcare Surrogacy Information

DDDS Alternatives to Guardianship

CLASI Services Flyer

A Decision Tree of Youth Mental Health Services

Surrogate Decision Making

Supported Decision Making

Psychiatric Advance Directive

Legal Support Choices in DE

Guardian with Limited Powers

Guardian for Adults

Durable Power of Attorney

Advance Health Directive

Children's Beach House

The National Committee for Quality Assurance (NCQA)

Center for Disabilities Studies | University of Delaware

Family SHADE

Down Syndrome Association

Nemours Children's Health

Disability Rights Delaware

Teach Zen Inc

Delaware Family to Family

Alphabet Soup

Managed Care Organization (MCO) Calls