Olga is a dedicated advocate for families with children who have special health care needs. Inspired by her late son Victor, who had a rare genetic disorder, Olga has pursued numerous posts as a parent advocate at both local and state levels. Her experiences during Victor’s frequent hospitalizations and the challenges of caring for a medically complex child have equipped her with invaluable insights into family engagement and partnership with professionals. Olga’s advocacy work provides her with a unique perspective on how families access care and the potential barriers that may impede access and impact health outcomes.
With over seven years of experience working with family caregivers, Olga has been instrumental in promoting community engagement by supporting emerging leaders through training, mentorship, and advocacy. She actively participates in advisory committees aimed at improving healthcare policies for children with complex medical needs in Delaware. Olga’s commitment to her cause and her on-the-ground advocacy efforts make her a well-informed and passionate advocate for families navigating the systems and services for their children.
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